I have often found that my experiences with sickle beta-zero thalassemia make me more resilient. I will recover from a weeklong hospital stay feeling stronger for beating the pain, and leave a doctor appointment feeling proud about how well I am adhering to my medications. But after my most…
People with sickle cell disease (SCD) who live in sub-Saharan Africa are less likely than those in other countries to use common medications to manage the condition, including over-the-counter pain-relieving medicines, a study found. These patients also tended to report a lower perceived disease burden than those in high-income…
Discussion
The quiet, creeping isolation that comes with living with sickle cell disease is a reality we rarely discuss enough. When you live with a moderate to severe form of the condition, isolation becomes a recurring part of your existence. Through lived experience, I have learned that this isolation is…
Clinician bias toward people with sickle cell disease (SCD) may be tied to stigma around opioid use, rather than race or chronic pain alone, a new study suggests. “Although patients with sickle cell disease routinely use opioid medications to manage their chronic pain, the vast majority do not…
Becoming educated and informed about sickle cell disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your sickle cell disease journey.
A stem cell transplant is the only potential cure for sickle cell disease, but there are a variety of other treatment approaches. Here you can find more information about current treatments as well as experimental therapies in the pipeline.
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